26 February 2012

I was pretty good today, but I didn't eat all day until late in the evening. So the whole day I ate nothing. Besides this evening, the last I ate was yesterday at one p.m. After I ate this evening I started having issues. There's now a lot of blood, but sometimes there isn't any. I am not sure what to do for a living now. Whatever it is, I have to be able to use the washroom every 1/2 hour at least. Sometimes more often, sometimes less often. I joined a site called Ihaveuc which is quite informative and helpful. I joined it a while ago. I may have already posted this. I see the surgeon on the 15th of March about removing my colon. I am going to try everything I can to not have it removed.

24 February 2012

I somewhat seem better outside of violent bouts of needing to poop all day and night. In between though I can eat and drink anything. I am trying to eat mainly healthy though. I can go for a couple of hours without pooping. I have

A Bit Worse

I bought the wrong kind of supplements I think. They are still Spirunilla and Astaxaxanthan (spelling is probably wrong) but different brands. Now I'm on the toilet all the time again and there is some more blood, but not too much. I'm up at least 7 or 8 times a night. I go all day as well. I'm trying to choke down the Aloe juice, but yuck. It is so gross.

Ate a Meal

I had an omlet (almost the entire thing) at IHOP today. I had one and a half pancakes and some fries (not too many) and some hot chocolate. I thought I'd puke afterwards and it has been ten hours since eating lunch and I still feel so full I feel like puking. I haven't puked, I just feel that full. It was really hard on my bowls. So far, not too hard though. I had to lie down for a while because I was exhausted and my bones were aching. I drank a bit of water, but I can barely drink anything because I am so full. My stomach hurts from fullness. I had a spinach, cheese and mushroom omlette with onions. It is all I ate all day, so it is weird that I should be so full I'm thinking. Or maybe I am so full because I usually don't eat very much.

Getting Better

I seem to be getting better. It is so gradual that I can barely tell, but I think I am. Last night I almost had a poop. Paste came out, so that's pretty close. Better than total liquid anyway. The supplements seem to be working. I am not better yet, but way better than I used to be. I think the Aloe Vera juice is working. That is fabulous. It is gross to drink though, very very gross. I almost can't stand it. I only drink it mixed with banana and blueberries with a chocolate protein mix. None of that covers up the stench. Gross.

I was pretty good today until I tried to eat something around noon. My muscles are sooooo sore from the personal training session. I could barely walk down stairs yesterday and today my legs are still sore. When Jacqueline tries to crawl on my lap I yelp if she touches my muscles. So, I must be more out of shape than I thought. I tried to drink the Aloe today. I mixed it in with a blueberry/banana/coconut juice/Attain shake. It was STILL gagging disgusting. I could smell it through the other scents. I can't imagine making myself drink that putrid stuff every day, but I had better if it has a hope of making me feel better. This diet would be great for me even if I wasn't ill. I have to go out to dinner with a friend tonight at 7. I can't imagine what I am going to order to eat that will be acceptable to my body. Perhaps I should just order a juicy cheeseburger and let the illness come. We'll see. I could order a normal meal and then box it and give it to David to have for lunch, but the problem is that it isn't a work day tomorrow as today is Friday. After the dinner I am going to my friend's house as I haven't been there yet. I have never seen it and she's been living there for about three years. I never did see her first house which was a duplex. I kept meaning to, but Jacqueline was so small and I barely ever saw her so I didn't want to leave her to see someone's house. Anyway, the issue is, is that if I eat something substantial for dinner and then go to her house, I will have to explode crap at her house and that would be quite disgusting for her family. I am not sure if I want to do that. I really have to see her house though, so maybe I will just try really hard not to eat anything. I'll just have a hot chocolate or something. I don't actually like pop anymore. It tastes way too sugary now that I am not used to it anymore. I wish I could get my children to see how bad it is. They don't really drink that much pop anyway, but I wish they would drink less.

Personal Training Session

I won a personal training session. I I couldn't tried to do it today. I couldn't do it after a bit. I felt sick. My stomach hurt too much, but I could do some of it. The trainer wanted me to sign up for a year of personal training at $105.00 per month. I thought I was ok, and then I thought I would pass out and I had barely done anything. I felt so out of shape. I am not though. I did some stuff that the guy said a lot of people can't do, so I am sort of in shape despite the weight loss and lack of proper eating. I was ill after lunch today. Liquid came out as usual, but no blood at all. I didn't go to the washroom all day besides when I woke up. First I went was noon after lunch. I had some potatoes with skins and a blueberry/banana/milk and Attain shake. I only had half a scoup of Attain. My stomach is still hurting from lunch. At breakfast I had an Attain bar.

Toilet Visits and Diet

I was on the toilet repeatedly during the night. I had a blueberry/bananna/applejuice/strawberry shake this morning for breakfast. I also had Lipton Chicken Noodle Soup. I've only been on the toilet about five times this morning so far and it's 10:14 a.m. My stomach doesn't hurt too bad so far. I need to buy that aloe juice still but I am busy making a cake for s omeone that I promised it for way back at the beginning of December. I am in a panic trying to get it done.

I am shakey from crapping so much. I think banana's help. My general practitioner doctor told me to have a banana a day if I can stand it. I just had a few chips too. The chips are bad. At least my appetite isn't so bad. I think I am somewhat better. The supplements are helping I think. I am scared to try that aloe yet though. I'm going to though. So far, the supplements are helping. There is very little blood, but still blood.

Almost off prednisone.

My stomach is almost not swollen this morning. I promised myself last night on the toilet I would try not to eat anything today to give myself a rest. I think I may be exhausted from pooping over 20 times a day. About six of those times was durng the night making it difficult to sleep. My bones are aching quite a bit. There's still blood with the supplements, but far less than there used to be. I am on 1/2 a tablet of prednesone (5 mg) so I am almost totally off of it. If I were to keep taking it it would be four months of prednisone and that is too dangerous to me considering their side-affects.

I have to bake a carrot cake with elaborate decorations for someone today. I think I can do it. It is not due to be delivered until tomorrow, so as long as I get started today and get the cake baked and the fondant on, I should finish it on time with no issues. I am so tired though - but I think I can do it.

My stomach still hurts though. I am not sure about going to the gym, but I am going to try it. I need to take care of keeping my blood flowing and my heart pumping. The doctor said it is good to work out, but I am not working out like I used to as I am scared about how much calories I am taking in when considering how much I am burning off. I streatch a lot and do light weights. I also walk and sometimes jog.

Going to try aloe

I ate today. I had my supplements that I am trying. I have to buy some aloe to drink and see if that will help. I am a bit scared to because it says it helps your colon's immune system and why does the doctor give me immune suppressing drugs to help me and others think I should take aloe to help the immune system? I thought that was what I was trying to suppress? Since some people said that it helped them, I am going to give it a try. I would have thought it can't get much worse before, but now I know that it can!

I was really wiped out today. I am so exhausted. I actually went to bed for a little while after church. My bones are aching. My stomach swelled up a little while after I ate some food. It looked for a bit like I was three months pregnant. It then went down again, but it's still somewhat swollen. I wish I could get better. I have to figure out what to eat to give me nutrition and not hurt me. The supplements were kind of expensive. It should work out though since I barely ever eat anything. I save money that way!

Can't Sleep

I can't sleep and I have no one to complain to except this blog. It is more difficult to concentrate because my stomach hurts so much and my body is aching a lot. I am very tired though. I'm so tired all the time lately. I wish I could rest from my body and that everything was fine.

Blue Lips

I felt extrememly ill today. I ate nothing all day, and then at 1:30 I went to a Chinese Restaurant to bring my children. I ordered food as it is somewhat rude to go to a restaurant and not eat. I had fried rice, four pork dumplings and some cooked beans and water. I ate two fortune cookies at the end of the meal. I was so ill on the way home that my lips turned blue!? Perhaps it was totally unrelated, but they were blue. I was not cold. It was weird. The blood is much less. There is almost none. My stomach hurts though - really badly. I slow down for any bumps because drivng in the car and hitting a bump hurts a lot. I have to race to the washroom at weird times with little warning. At least I can feel what is going on with my body. Prednisone helped, but I think it was there only to stop the bleeding. I am also very exhausted. My body feels ill. I am scared to move because if I jerk myself too much I hurt my bowls really badly and then I need to go to the washroom. I am going to google to find out why my lips might be blue. My heart also pumps weirdly. It is pumping too fast a lot. I just googled it and one sight said that if I experience dizziness with blue lips I should call 911. That's not going to happen. I don't need 911, if I need to go to the doctor's I can drive myself. Also, I don't feel I need to go to the doctor's. Plus, it's a random website I just googled. I think my lips turned blue because I must have anemia from losing so much blood in the last three months.

I ended up eating something after 3 p.m. yesterday. I had a bananna/blueberry/Attain shake. I also had a cup of herbal peppermint tea. This morning I had a bowl of cream of wheat with milk and brown sugar. I feel like puking. I've also gone to the washroom about five times last night. I went to the washroom about six times this morning so far and it's 9:54 a.m. My stomach is bubbling. I have to go to the health food store because someone told me a few other supplements that I should try so I am going to try them. Chlorella and somethng that starts with an A. I'll say the name later if I remember what it is. Chlorella works on mice or something like that apparently and human studies showed that it worked on humans. Here's a link to the study someone showed me: http://mobile.nutraingredients-usa.com//Research/Astaxanthin-shows-benefits-against-colitis-for-mice-at-least . It looks promising. Astaxathin is the other thing that starts with an A. It is supposed to be pretty good as well. Perhaps that is better if you are already healthy and to maintain health; I don't know, but I'll try it. I have nothing to lose. I have to also go to the store to get some things from the grocery store, so I can stop by and get the new supplements at the same time.

No food yet today

I haven't eaten today yet. It's 2:37 p.m. My stomach has been hurting all day. I didn't really feel hungry anyway, so it is not like it's torchure or anything. Jacqueline (my youngest who is five) had a bath and is just getting out. I had a bath earlier. I went tot he gym, but didn't really work up a sweat. I walked for 20 minutes and did 30 minutes of streatching and weights. I think I will hold off eating and see if my stomach feels better tomorrow. There's no point in making myself eat if I am not hungry anyway. I ate quite a bit yesterday anyway compared to what I usually eat. I have gone to the washroom about 25 times today already. There was less blood. There was actually some liquid poop. I have over two weeks until I have to go to the doctors and talk to the surgeon. I am hoping that I can somehow get better before then so that I will not have to get my colon removed.

My stomach is pretty bad. I am taking less and less prednisone. I am at one tablet and a half of 10 mg tablets. I have bad heart burn right now too. I never heard of that being a side-effect of Ulcerative Colitis before. My stomach is distended a bit. Looks kind of like I'm a little bit pregnant. I ate a lot yesterday - a piece of rice krispie cake, an order of chips and salsa from Buffalo Wild Wings, a spirinella energy bar and a half, and a blueberry/bananna Attain shake with milk. My stomach is pretty sore today. I was on the toilet about ten times this morning and only about three or four times last night. I bought some spirinella tablets yesterday and took six of them. I also bought calcium tablets and took four of them and a vitamin D 500 uc tablet. Today I will see if I can control myself not to eat as much as yesterday to give my stomach a rest. I don't know if I will be able to as I really enjoy food, but it is really important that I do whatever I can to try to get rid of my stomach issues. Obviously the medicine is not working as I have been on prednisone for almost four months. I have tried Asacol and some other drug that starts with a B.